http://www.ntsad.org The National Tay-Sachs & Allied Diseases Association (NTSAD) is dedicated to the treatment and prevention of Tay-Sachs, Canavan, and related diseases, and to provide information and support services to individuals and families affected by these diseases, as well as the public at large. Strategies for achieving these goals include public and professional education, research, genetic screening, family services and advocacy. www.climb.org.uk Climb National Information Centre for Metabolic Diseases www.sandhoff.org So you have a diagnosis of Sandhoff Disease, now what, you might be thinking. Well this website is dedicated to information, guidance, support, research and honouring our children affected by this dreaded disease. This site is created by parents and all information has come from various online resources, we have compiled it all together on one site to bring you the most valuable information and resources for this disease. We have a parental support system as well and are here for any families with children diagnosed with Sandhoff Disease, please email us at any time. www.familyfund.org.uk The Family Fund is a registered charity covering the whole of the UK and is funded by the national governments of England, Northern Ireland, Scotland and Wales. The Family Fund provides timely grants to families with severely disabled or seriously ill children, based on families' views and needs. www.direct.gov.uk Disability Living Allowance - sometimes referred to as DLA - is a tax-free benefit for children and adults who need help with personal care or have walking difficulties because they are physically or mentally disabled. Carer’s Allowance - a benefit to help people who look after someone who is disabled. You do not have to be related to, or live with, the person you care for.